Sunday, September 26, 2010

Symptoms List

Every person with Chiari is affected differently. This is a general list of symptoms.
  • Headaches/Migraines
  • Neck/Head pain
  • Pressure in the head/neck
  • Dizziness
  • Lightheaded
  • Tingling/Numbness in extremities
  • Balance problems/clumsiness
  • Memory problems
  • Vision problems (spots, double vision, 'halos', etc)
  • Restricted Movement
  • Pain with bright lights and loud sounds
  • Ringing in ears
  • Decreased sensitivity to temperature
  • Problems swallowing
  • Vertigo
  • Fatigue
  • Muscle weakness
  • Nausea
  • Burning sensation in extremities
  • Slurred speech
  • Problems with Depth Perception
The list could go on as there are many more.

Friday, September 24, 2010

Article and Walk

I'd like to share a link to an article written by myself and my friend Allen. Please take the time to click and read. If you have a facebook or other site, please share it.

Living with Chiari

Me at the ChiariPeople of Pa walk September 18th, 2010

A group of walkers getting ready for the start.
(Photo credit for this one goes to Renee Tobias)

Monday, September 20, 2010

What is Chiari Life?

Chiari Life...

For starters my name is Alicia. I'm 23 years old and this is my life with Chiari Malformation and Syringomyelia. Never heard of them?

Chiari (key-r-e) Malformation (CM) - is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull toward the spinal cord, putting pressure on the brain, skull, and spine and causing many symptoms.

Syringomyelia (sear-IN-go-my-EEL-ya) (SM) - is a chronic disorder involving the spinal cord. The condition occurs when cerebrospinal fluid (normally found outside of the spinal cord and brain) enters the interior of the spinal cord, forming a cavity known as a syrinx. This syrinx often expands and elongates over time, destroying the center of the spinal cord. As the nerve fibers inside the spinal cord are damaged, a wide variety of symptoms can occur, depending upon the size and location of the syrinx.

More in my next post on symptoms and such.

Info sited from myself as well as: 

UPDATE: 02/18/15
Chiari-Life started as an outlet for me to vent frustrations, thoughts, and well... raise awareness. But really just a place I could type what I was thinking as it came up. Then I started a Facebook page not long after realizing there are a lot of other people who want to get the same frustrations and thoughts out. The same people also have questions and things they want to talk about. We have odd habits and symptoms unique to us. But it turns out with each new story and experience we are able to provide support, education, and awareness for Chiari Malformation.
I do my best to check the validity of the sources on any links I share on any of my pages. I read them and post them if I feel they are worth sharing for support, education, and awareness. Or even just a laugh. If I miss something or it turns out to be false I will look into it. 

I have Chiari Malformation and Syringomyelia and this is my Chiari-Life.

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