Monday, February 23, 2015

Nitwit. Blubber. Oddment. Tweak.

"..I would like to say a few words. And here they are: Nitwit! Blubber! Oddment! Tweak! Thank you." -Dumbledore - Harry Potter

Well Happy New Year 2015! It's been a whole year since I've posted. (I'm really good at this.) If you're following on Facebook, you'll see I post there a bit more at least.

Let me catch you up on the last year. 2014 was a big year for me. In April, Joe and I went to Disney World (yay!) On April 6, Joe proposed in front of Cinderella's Castle. Of course I was a bit out of it that day due to some med changes so I picked the farthest spot from the castle to get pictures because of lines and I was antsy. Usually I'm all about pictures and he's just the opposite. I should've known something was up when he kept trying to get pictures. We finally get to a photographer, at the farthest spot from the castle down Main Street. I went to put my arm around him and he said hold on. I thought he was going to tie his shoe when he got down on his knee. When I realized what was happening all I kept saying was "Are you serious?!" (which I repeated so many times!) I said yes :D

We didn't hear anyone who had stopped to watch and clap and cheer until we hit the real world. It was like we were in our own little place. This lady walked past us and said "I saw that!" Hahah. About a 1/2 hour later I got a phone call from a Disney Photopass Manager letting us know that something happened with the camera settings and the photographs didn't turned out. (I'm dying inside) They wanted to meet us wherever we were and take us to the Rose Garden in front of the castle to re-take the pictures for us. We were really crushed that the pictures were ruined. But on the other hand Disney took care of the situation before it became a situation. They didn't wait for us to come to the photopass center at the end of the day to find out. There would've been a higher chance of problems this way. We got our pictures done and done. I do wish I knew what the originals looked like.. But I have my imagination. (I don't know which is worse?)

We were house shopping and as of the end of June we settled, then moved in beginning of August. We are unpacked and settling in. I have yet to get a picture of us in the house. (Shame on me.) I have Plenty of me, Beanie (the dog), and Toothless (the blue-tongue skink). Joe---nope. The 4 of us...nope. I swore we were getting a family picture with the Christmas tree before that sucker came down. Never happened.  I think I covered the gist of  2014?
Chiari...Same old shit. I really need to record my pain, all of it. All the symptoms I have and everything that goes along with it. I talk about a Chiari Journal. I have probably 3-5 journals at home, nice Harry Potter or Disney print and they're sitting empty. No excuse.

Something I'd like to ask or actually start a discussion about on the Chiari-Life Facebook page, is about Depression. Were you diagnosed with Depression after you were diagnosed with Chiari? Or even before your Chiari diagnosis? Also, what type of depression were you diagnosed with? What  medicines you were put on? Are you still taking them? How did they effect you?

I was diagnosed with Depression after Chiari. But honestly I can't remember when. It was years ago. I've been on so many different depression meds to finally get to one that helped. What I didn't do is write down how I felt on each med or what effect it had. But I had constant weight gain from the depression meds. Even on low dose. No change in diet at all. When I got off of them I dropped weight. After I was regulated on one for about 2 years (maybe 3?) my doctor wanted to ween me off of it to see how I was. That was the med I stopped during the above Disney trip. Since then we've had so much going on that I haven't had much time to settle myself to really know how I'm doing. And as I said, I should be recording these things. Not just my Chiari pain. It would help me discover if there was a pattern (yes mom, a pattern). So here's to figuring things out.

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