For starters my name is Alicia. I'm 23 years old and this is my life with Chiari Malformation and Syringomyelia. Never heard of them?
Chiari (key-r-e) Malformation (CM) - is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull toward the spinal cord, putting pressure on the brain, skull, and spine and causing many symptoms.
.gif)
Syringomyelia (sear-IN-go-my-EEL-ya) (SM) - is a chronic disorder involving the spinal cord. The condition occurs when cerebrospinal fluid (normally found outside of the spinal cord and brain) enters the interior of the spinal cord, forming a cavity known as a syrinx. This syrinx often expands and elongates over time, destroying the center of the spinal cord. As the nerve fibers inside the spinal cord are damaged, a wide variety of symptoms can occur, depending upon the size and location of the syrinx.
More in my next post on symptoms and such.
Info sited from myself as well as:
www.asap.org
www.conquerchiari.org
UPDATE: 02/18/15
Chiari-Life started as an outlet for me to vent frustrations, thoughts, and well... raise awareness. But really just a place I could type what I was thinking as it came up. Then I started a Facebook page not long after realizing there are a lot of other people who want to get the same frustrations and thoughts out. The same people also have questions and things they want to talk about. We have odd habits and symptoms unique to us. But it turns out with each new story and experience we are able to provide support, education, and awareness for Chiari Malformation.
I do my best to check the validity of the sources on any links I share on any of my pages. I read them and post them if I feel they are worth sharing for support, education, and awareness. Or even just a laugh. If I miss something or it turns out to be false I will look into it.
I have Chiari Malformation and Syringomyelia and this is my Chiari-Life.
Follow Chiari-Life:
Tumblr
This comment has been removed by the author.
ReplyDeleteHi,I just would like to say I just recently got diagnosed with Chiari Malformation 1,7mm..and I also have, Fibro..Getting reading to have 3 MRIs here in Feb 2016.Hurting all the time. Nothing knew,always looking up though for a better day.
ReplyDelete