Tuesday, October 11, 2011

Walk Totals 2011

Congratulations to all those who participated in the Chiari Walks all over! I'd also like to say thank you to any who donated their time, money, effort, and support!

Walk totals:

Conquer Chiari Walk Across America Sites raised over $380,000!! There were 5,500 + walkers who joined in at walk sites all over. (info taken fromt their site)
That is AMAZING!

American Syringomyelia & Chiari Alliance Project have walks continuing throughout the year.

ChiariPeople of Pa had their Walk on September 17th for Wishes and Rainbows. They raised $3,100!!
Article above from the local newspaper ^

Indiana Northwest raised $27,000 with 300 walkers!!
Courtesy of my friend Carla Stone.

Saturday, October 8, 2011


Have you ever heard of a headache or migraine journal/notebook? Basically its to keep track of when you get them, what you did before and after, what you ate etc. It is to help figure out if there is a common trigger or something in your daily habits that may cause them.

It's been suggested that I keep one. Chiarians especially, I think should keep one. Not only on just the head pain, I think the other symptoms (along with those really odd ones) should be noted.

Here is a Chiari Journal Entry from
September 28th, 2011
"I'm at work. I started getting dizzy, lightheaded, seeing spots when I move my head, and cold sweats. I feel like I could faint. I started feeling like this around 4pm. (I wasn't feeling too great when I got up either but nothing similar to the above) It was about 78 degrees outside and humid. Inside work was hot too. I turned the a/c and fan on. I also grabbed a cold rag and wrapped it around my neck. It's 6:45pm now. I still feel all of the above, only less cold sweats.
The only thing I've eaten today so far was crackers - I don't know that they helped any. I feel like either my blood sugar is super low (I am not diabetic) or my blood pressure is very low (what would make it drop like that, esp when I have good bp). I've had caffeine and sugar.
September 29, 2011
This lasted until around 1-1:30 am about 9.5 hours. Today I had the dizziness and headpain with a fever off and on.
Basically that is the sort of thing to record. What things you're feeling, what you were doing, what you ate etc. I don't know if what went on was Chiari related. It's hard to tell. I'm practically dizzy or lightheaded daily.
But you get the gist. I haven't done this long enough to see if it helps any. It may help with regular headaches.
So as it is the month for Halloween... I think the blog is in need of decoration.