25 Years Young

Hey all! Sorry it has been awhile! I have been so busy and overwhelmed with real life. Since I left you last I went to the Outer Banks for a week with my boyfriend and his family. I had a great week! It went way too fast of course. Luckily, I only had 1 real bad Chiari day. The day Joe and I went to the beach was very hot and humid. I think the heat and laying out on the beach just killed me. My head messed that day up a bit. So we cut our beach time short. I ended up laying down for a few hours when we got back to the house. Overall though, I had a great time! I wish I could be back there.



At the pool soaking up the sun.

On sunday, I celebrated my 25h Birthday. We had crabs, cake, and presents of course! I had a wonderful birthday! I have pictures but they are not uploaded yet.

I've been crafting a bunch lately. I may have some of those items to share with you in the next post.

 

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The 14th Annual Horrorfind Weekend Convention is coming up this weekend. I will be working admissions again. August 31t - September 2nd at the Wyndham Gettysburg Hotel in Gettysburg, Pa.
If you're heading out for Horrorfind Weekend be sure to say hi!!

HFW Staff photo a few years ago

 

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September is coming up very soon. If you didn't know...September is Chiari Awareness Month. So what are you doing to spread awareness? Share your ideas in the comments and be sure to head over to Chiari-Life on facebook and LIKE us.
Some states have September recognized as Chiari Month. Does yours? You can check by looking through your governors page for information. Also you can check here for different bills and resolutions through the Federal and State Legislation
I found one for Pennsylvania for 2011.
I hope we can all come together and raise more awareness.
Let's get #Chiari trending on twitter for september! Be sure to add #Chiari to all of your twitter posts. Follow me @BearlyBurnt and RT #Chiari:)