What can you do to help support and spread awareness for those with Chiari Malformation?
It's very simple:
Ask us about it.
Take the time to learn.
Share a link on your facebook/twitter etc.
Tell someone else about it.
Go to a Chiari Walk.
Wear Purple this month especially.
(Join the facebook event and share it! That helps too!)
Chiari Malformation is almost as common as Multiple Sclerosis (MS). You've at least heard of MS before haven't you? You may not know what it is...but you've heard of it. Chiari is so misdiagnosed that its name is not out there as is MS. About 1 in 1,000 people have Chiari. It affects more than 300,000 people in the U.S.
September 17th there will be Chiari Walks held all over. Below in a previous post are some links with various site locations posted.
This is for Wyomissing, Pa:
Chiari Walk for Wishes & Rainbows
These sites have walk sites listed.
|This is me, wearing purple. And yes. I'm with some True Blood cast :)|
I want to see your Purple Chiari Support! Post it here, twitter, facebook.
If you're on Twitter...lets get #Chiari trending for September!!
Copy/Paste this then post on twitter!
Or Follor me and RT @BearlyBurnt
"Trend #Chiari Malformation Awareness! #Chiari #Chiari #Chiari #Chiari #Chiari #Chiari #Chiari #Chiari #Chiari #Chiari #Chiari #Chiari RT"